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End-of-Life Care for Hawai‘iʻs Ohana

This project is funded by the U.S. Administration on Aging, National Family Caregiver Demonstration Project (2002-2004)

This project explored the impact of group-targeted messages and individually tailored support on end-of-life planning by family caregivers of elders receiving long-term care (LTC) services.

Five booklets have been developed:

  • Advance Care Planning: Making Choices Known
  • Planning Ahead: Funeral and Memorial Services
  • Preparing to Say Good-bye: Care for the Dying
  • When Death Occurs - What to Do When a Loved One Dies
  • Help for the Bereaved: Surviving and Adapting to Change

The Complete Life Series is now available online:

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Booklet 1: Advance Care Planning - Making Choices Known

Download PDF
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Booklet 2: Planning Ahead - Funeral and Memorial Services

Download PDF
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Booklet 3: Preparing to Say Good-Bye - Care for the Dying

Download PDF
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Booklet 4: When Death Occurs - What to Do When a Loved One Dies

Download PDF
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Booklet 5: Help for the Bereaved - The Healing Journey

Download PDF

Advance Directives - Short Form

Download PDF

Because research shows that print messages alone have limited success in changing end-of-life planning behaviors, caregivers also are offered a choice of individually tailored supplemental support—group training, telephone counseling, or assistance from service providers.

Partners in this research include:

  • Castle Medical Center Caregivers Group
  • Department of Health, Case Management Services, Kona
  • Honolulu Gerontology Program
  • Honolulu Meals on Wheels
  • Hospice of Kona
  • Kokua Kalihi Valley Elderly Services
  • Kona Adult Day Center
  • Kona Community Hospital
  • Life Care Center at Kona
  • Maluhia Nursing Home
  • Nursing Home Without Walls
  • Project Dana
  • St. Francis Dialysis Center, West Hawai‘i
  • West Hawaii Home Health Services, Inc.

The project will: identify the stage of caregivers of elders receiving LTC; provide 600 caregivers with appropriate message booklets and their choice of supplemental support; track changes in end-of-life knowledge, attitudes, and behaviors (KAB); document culturally linked barriers to end-of-life planning and strategies to address them; and compare costs of each approach. Expected KAB outcomes include: increased knowledge of end-of-life issues and resources; improved attitudes toward hospice, planning for death, and dying at home; and completion and communication of advance directives (AD) and other end-of-life planning documents.

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