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"Cultural
Issues in End-of-Life Decision Making creates an engrossing tension
as chapters on philosophical topics are interwoven with clinically-oriented
ones including case examples that ground the reader in the reality
of most human decisions. I highly recommend this book to researchers,
health care providers, clergy, and other practitioners dealing
with end-of-life issues."
--Catherine Hagan Hennessy, Health Care and
Aging Studies Branch,Center for Disease Control and Prevention
End-of-life
decision making is one of the most difficult but crucial challenges
faced by patients and their families. In most cases, resources or
counselors providing guidance in these decisions are not available.
This book is intended to prepare nurses, physicians, and other health
care workers to fill this role, insofar as they are most frequently
in contact with the patient and his/her family and significant others
at the time choices must be made. In this informative, practical book,
Braun, Pietsch, and Blanchette first review the medical, legal, and
ethical context of the dying experience, discussing ethnic perspectives
and religious issues. For example, providing cultural and spiritually
sensitive care requires that nurses, physicians, social work and others
know and understand the implications of family members beliefs about
life and death, supportive rituals and other activities. This book
does a creditable job of presenting the issues and a broad overview
of culture and common religions in America.
About the Editors:
- Kathryn
L. Braun, Dr.P.H., is Director of the University of Hawaii Center
on Aging and an Associate Professor at the University of Hawaii School
of Public Health. She is a Fellow in the Gerontological Society
of American and the Association for Gerontology in Higher Education.
- James H. Pietsch, J.D., is Director of the
University of Hawaii Elder Law Program (UHELP), an Associate Professor
at the William S. Richardson School of Law, and a Clinical Adjunct
Professor at the John A. Burns School of Medicine. In 1990 he
was the Recipient of the Fifth Annual Paul Lichterman Memorial Award
for contributions to the advancement of Law and Aging.
- Patricia L.
Blanchette, M.D., M.P.H., is a Professor of Medicine and Public Health
at the John A. Burns School of Medicine and School of Public Health
at the University of Hawaii at Manoa. Dr. Blanchette is the Director
of the Medical School's cross-departmental Geriatric Medicine Program,
and Geriatric Medicine Fellowship Program, the Pacific Islands Geriatric
Education Center of Excellence in Geriatric Medicine. Dr. Blanchette
has won numerous awards and honors, including an Excellence in Teaching
Award, Distinguished Alumni, Best Doctors in America, and the Soroptimist's
Women of Distinction Award.
Table Of Contents:
Preface
Acknowledgements
Introduction
1. An Introduction to Culture and Its Influence on End-of-Life Decision Making
K. Braun, J. Pietsch & P. Blanchette
I. The Medical, Legal, and Ethical Context of Death and Dying
2. Physical Aspects of Dying J. Fago
3. Cognitive Changes That Affect Capacity and End-of-Life Decisions R. Martino
4. Autonomy, Advance Directives, and the Patient Self-Determination Act J.
Pietsch & K. Braun
5. Ethical Considerations and Court Involvement in End-of-Life Decision Making
M. Kapp
II. Ethnic Perspectives on End-of-Life Decision Making
6. Cultural and Religious Issues for African Americans C. Mouton
7. Advance Directives and End-of-Life Care: The Hispanic Perspective M. Talamentes,
C. Gomez & K. Braun
8. Cultural Issues in End-of-Life Decision Making Among Asian and Pacific Islanders
in the United States G. Yeo & N. Hikoyeda
9. End-of-Life Decision Making in American Indian and Alaska Native Cultures
N. Westlake Van Winkle
III. Religious Perspectives on End-of-Life Decision Making
10. Christian Perspectives on End-of-Life Decision Making: Faith in a Community
M. Rowell
11. Catholic Perspectives on Euthanasia and Assisted Suicide: The Human Person
and the Quest for Meaning M. Alexander
12. Jewish Perspectives on End-of-Life Decision Making W. Kavesh
13. Muslim Perspectives Regarding Death, Dying, and End-of-Life Decision Making
H. A. Hai & A. Husain
14. Buddhist Issues in End-of-Life Decision Making R. Nakasone
IV. End-of-Life Issues in Institutional Cultures and for Special Populations
15. Issues of End-of-Life Decision Making in the Hospital and Nursing Home
Culture C. Pierson
16. End-of-Life Issues in the Military Culture P. Nishimoto & R. Newmann
17. End-of-Life Issues in the HIV
AIDS Community R. Ogden
18. End-of-Life Issues: A Disabilities Perspective T. Koch
V. Implications
19. Talking to Patient about Death and Dying: Improving Communication Across
Cultures S. Kogan, P. Blanchette & K. Masaki
Author Index
Subject Index
About the Contributors
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